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My Haemophilia


Published byJoJonris

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9 thoughts on “ My Haemophilia

  1. MyHaemophiliaTeam is the social network for those living with haemophilia. Get the emotional support you need from others like you, and gain practical advice and insights on managing treatment or therapies for haemophilia. MyHaemophiliaTeam is the only social network where you can truly connect, make real friendships, and share daily ups and.
  2. Haemophilia is a rare condition that affects the blood's ability to clot. It's usually inherited. Most people who have it are male. Normally, when you cut yourself, substances in your blood known as clotting factors mix with blood cells called platelets to make your blood sticky and form a clot.
  3. Jun 25,  · Hemophilia is an inherited bleeding disorder in which a person lacks or has low levels of certain proteins called “clotting factors” and the blood doesn’t clot properly as a result.
  4. Severe hemophilia A. In addition to bleeding after an injury, you may also have frequent episodes of bleeding, often into the joints and muscles, without being able to figure out a specific cause.
  5. Haemophilia is an inherited condition and occurs in families. Haemophilia is caused by a mutation or alteration in the gene making factor VIII or IX, and this altered gene is commonly called the “haemophilia gene”. This altered gene is passed down from parent to child through generations.
  6. Hemophilia A is in five generations of my family—we traced it from my great grandfather down to my nephew. Hemophilia is not scary to us, as it is something that was around as we grew up. My dad had severe hemophilia A, and I remember helping him infuse (inject medicine into a .
  7. Hemophilia is a rare disorder. It can occur in all races and ethnic groups. Hemophilia A affects 1 in 5, to 10, males. Hemophilia B is less common, affecting 1 in 25, to 30, males. Around 60% to 70% of people with hemophilia A have the severe form of the disorder and about 15% have the moderate form. The rest have mild hemophilia.
  8. NHF’s Community Voices in Research (formerly MyBDC) connects the experiences of people with bleeding disorders and their family members to researchers investigating improving treatments and care. How does it work? As a participant in NHF’s Community Voices in Research (CVR), you complete surveys about your experiences living with a bleeding disorder.
  9. MyHemophiliaTeam is the social network for those living with hemophilia. Get the emotional support you need from others like you, and gain practical advice and insights on managing treatment or therapies for hemophilia. MyHemophiliaTeam is the only social network where you can truly connect, make real friendships, and share daily ups and downs.

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